Thalidomide UK Team

Kim Fenton

President of Thalidomide UK

I was born with very shortened legs, my feet are upside down, my arms are shorter than average, and I have just four fingers on each hand. These are not things that make me less, they are the marks of a life that has had to be braver, stronger, and more determined than most will ever know. My parents gave me the greatest foundation of all, they made me believe I could do anything. I learned to move, to adapt, to live fully in a world built for bodies very different from mine.

I am immensely proud that I felt so deeply about the injustice facing thalidomide survivors that I undertook a 10‑day hunger strike. It was gruelling, I lost 9 pounds grew very weak and drained but it brought world media attention, and our campaign succeeded in securing vital extra funding for all survivors. When Diageo took over from Guinness, we fought again and won an even bigger financial commitment. We also stood firm to ensure the pilot health grant scheme was kept in place and continued. 

I keep fighting because justice is not yet done. We won important victories, but we only ever received 40% of what was truly owed. 60% was withheld, and that gap grows wider every single day. I am committed because no one should spend their final years worrying about how to afford the care they need to live with dignity. I have given thirty years already freely, fully because this is not just about money. It is about ensuring that every survivor gets what they were promised, what they earned through a lifetime of courage, and what they deserve for the rest of their days. And as long as I have breath in me, I will stand persuasive, dogged, unshaken for every survivor who needs someone to fight for them. 

Vice President of Thalidomide UK

Glenn Harrison

I have one finger on my left hand and a stump for a right hand. I also use two artificial legs for mobility walking. It emotionally affects me when I see my fellow beneficiaries struggling for justice, we will always protect our family.

I am really proud of securing the trust fund for the lifetime of beneficiaries; it was a great team effort. I am also proud to say I played a role in making thalidomide as safe as possible for its use today.

I am committed to the current campaigns to put the injustice right and for the memory of those who are no longer with us. We fought together, cried together and laughed together.  

About Thalidomide UK

If you are a beneficiary of the Thalidomide Trust we hope you will have heard of Thalidomide UK. You may also have come into contact with Kim and Glenn on a personal basis as we have offered our support to many of you over the years. 

Thalidomide UK (previously TAG) can trace our roots back to the early 1990s.  During that decade we were instrumental in achieving a major breakthrough by persuading Guinness plc to finally accept responsibility for the liability it had assumed when it bought Distillers.  That deal was worth £37.5 million.  Since then we have been actively involved in the campaigns over the taxing of our receipts from the Trust, the Health Grant, and of course the Deed of Covenant entered into by Diageo that runs until 2037.  In 2005, along with the NAC, TUK was a signatory to an agreement with Diageo and the Trust to be involved in all future Chair's Reviews.  

Sadly, all of this campaigning has not achieved the lasting financial security that all of us want.  So, we have once again put on our battle dress ready for one final "Hurrah" while we still have the energy!

On this page you will find details of our aims.  Please have a read and see if you agree with us.  If so, we would be so pleased if you joined us by signing up.

Together we are strong.